I'm a stay at home mom to two amazing boys. We're not your average family and we have overcome many obstacles with our oldest son Keegan. He was born at 24 weeks 6 days and weighed just 1 pound 12 ounces and was 13 1/2 inches long. He has many different health issues that have kept us on our toes, but he has a smile and laugh that can cheer up even the grouchiest person!!! We also welcomed Karson to our family in the middle of July and Keegan loves being a big brother!! I'm sure these boys will be keeping me busy for awhile!

Thursday, October 8, 2009

Another month

Well September flew by!!! Keegan is still doing great, he's been cranky these past couple weeks but medically he is doing great!!! He got his leg braces last week and hasn't really seemed to mind them! He also got fitted for his stander earlier this week so hopefully we can get that in the next couple of months!! Other than that he's just been keeping me super busy by driving him to all his therapies and working with him at home!!! Hope everyone is having a great week!

Monday, September 7, 2009

Can't believe he's 3!!!


It seems like yesterday but in all reality Keegan turned 3 a week ago!! I just can't believe it!!!! He has really started to show improvements this summer and I'm very anxious to see what next year brings!!! He got fitted for leg braces and once those come in, he'll get fitted for a stander to help him learn to stand!! We're also still waiting for the paperwork to get done to order him a kidcart, which is a wheelchair/stroller in one! Which will be very helpful for him in school next year!!! Keegan always seems to amaze me everyday!!

Wednesday, August 19, 2009


Wow I can not believe that summer has come and gone already!!! Seems like it just started!!! Keegan is doing amazing with his glasses and since his last eye surgery. He turns 3 on the 30th of this month and I can't believe how fast it's gone by!!! We're transitioning him into school programs. He won't be going to pre-k yet but he will be getting therapies through the school this year plus he will be keeping his Physical, occupational, and water therapy that he gets in Quincy 3xs a week so come September I will be Keegan's own personal driver everywhere!! Haha I hope everyone is having a great summer!!! The picture is Keegan during some developmental therapy and he was exhausted at this point!!! Keegan also got fitted for leg braces a couple of weeks ago and once those get in, he will get fitted for a stander!!! Hopefully all his new equipment can help him get stronger this next year!

Saturday, June 13, 2009

Sorry!

Sorry that it has been so long since I posted an update!! Keegan is doing great! We went and saw a vision specialist and they did over three hours of testing! Keegan will be having eye surgery again on July 28th to help strengthen his eye muscles! He is also getting glasses to help with his vision yay!! We're already calling him the little professor! He will also be going back to have some more vision testing done to see how he does with tracking!!! We are going to the Cerebral Palsay Center on Monday for testing there, then off to the eye center again to get his eye measurements for surgery, and then up to same day surgery to get him checked out and then depending on how tired Keegan is or how good of a mood he is we may be going to the St. Louis Zoo!!! As soon as we get his glasses in I will promise to get some new pictures up!!!

Wednesday, April 22, 2009

Some Great News!!!

I can't believe another month has flown by. We had our March of Dimes walk this past Saturday and our family raised $530!!! It turned out to be a pretty good day, it sprinkled on us a bit but at least it was warm out this year!! Keegan is doing wonderful! He is starting to say Mama, Dada, and Ba Ba a whole lot more!!! He has also hit a huge milestone because his current weight is 21 POUNDS 12 OUNCES!!!! Yay!!! And he's also 32 inches long!!! So excited that he finally weighs over 20 pounds! His has been constantly improving on his therapis also! We also found out today that Keegan got accepted by a program called Littlest Heroes Project! What they do is take kids with special needs or with health problems and take pictures of him and the family for free, so it's a wonderful program and if you get a chance go check out thier site it's www.littlestheroesproject.org

I think that's about it for now!!!

Sunday, March 29, 2009

Wow it's been awhile!

Hey everyone, sorry it's been so long since I have posted. Keegan has continued to do great. Battling the sniffles off and on but nothing too serious!!! This month he got a new therapist for his vision and she is awesome. We also are going to be seeing a vision specialist in St. Louis in June to find out more about Keegan's vision and how well he can actually see, so we are very excited about that!!!

Thursday, February 5, 2009

Superman

Well Keegan has become a new little boy. We have had two amazing weeks of wonderful therapy sessions. He's rolling from side to side and holding his head up better and just overall getting stonger!! We use to be lucky to get one good therapy session a week but it seems like Keegan has decided it wants to do well every therapy session!! We couldn't be prouder of him!! Hope everyone is having a great week!!



Monday, January 26, 2009

Hello everyone

Hey everyone things are going pretty well here!! We made a quick trip to St. Louis last week to see our surgeon bc Keegan was having green diarrhea for two weeks and all of his labs were normal and they went ahead and put him on an antibiotic to help what ever bug he has and he has definitely been feeling better!! We are still working on all of his therapies trying to help Keegan get stronger!!! I'll try and get back on later and post some new pics!

Friday, January 16, 2009

Wow

So I apologize that it has been well over a month since I have posted! Christmas has come and gone and well Keegan got spoiled haha. He got alot of new toys to help him in therapy and of course new clothes! He has been doing really well! Battling little illness here and there but nothing too serious!! I promise to start posting more instead of so far in between!! I hope everyone has a great weekend!!

Our New Journey

Our New Journey
One of our first photos of Keegan

Welcome to Holland


I am often asked to describe the experience of raising a child with a disability-to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this...
When you're going to have a baby it's like planning a fabulous vacation to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum, The Michelangelo David, the Gondolas in Venice, you may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later the plane lands. The stewardess comes in and says Welcome to Holland.Holland?!? you say. What do you mean Holland? I signed up for Italy! I'm supposed to be in Italy. All my life I have dreamed of going to Italy.But there has been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.So you must go out and buy new guide books. And you must learn a new language. And you will meet a whole new group of people you would have never met.It's just a different place. It's slower paced than Italy, less flashy than Italy. But after you have been there for a while and catch your breath, you look around....and you begin to notice that Holland has windmills...and Holland has tulips...Holland even has Rembrandts.
But everyone you know is coming and going from Italy...and they're all bragging about the wonderful time they had there. And for the rest of your life you are going to say Yes, that's where I was supposed to go. That's what I had planned.And the pain of that will never, ever, ever ,ever go away...because the loss of that dream is very, very significant loss.But, if you spend the rest of your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, very lovely things...about Holland.

By Emily Pearl Kingsley 1987