I'm a stay at home mom to two amazing boys. We're not your average family and we have overcome many obstacles with our oldest son Keegan. He was born at 24 weeks 6 days and weighed just 1 pound 12 ounces and was 13 1/2 inches long. He has many different health issues that have kept us on our toes, but he has a smile and laugh that can cheer up even the grouchiest person!!! We also welcomed Karson to our family in the middle of July and Keegan loves being a big brother!! I'm sure these boys will be keeping me busy for awhile!

Tuesday, September 28, 2010

Hey everyone

Fall has arrived!! I have to say I love this time of year!!! Well Keegan is keeping me super busy during the week!! In the mornings he has Pre-K till about 11am. Then on Tuesday we drive about 30 minutes for Physical Therapy and Speech Therapy. On Wednesday we drive again 30 minutes for Physical Therapy and Occupational Therapy. Then on Thursday we drive the same drive for Pool therapy!!! But I have to say it is all worth it especially since it is definitely helping Keegan get stronger!! He is tolerating about 1 hour a day in his walker. He isn't really taking steps forward by himself but if you push him by the handle slowly he will walk, so this is a huge accomplishment!!!! I would love to get him tolerating it at least 3-4 hours that way he can go to pre-k in his walker. Keegan absolutely LOVES school!!! He gets excited every time we mention it!! This week we are heading down to St. Louis Children's Hospital for his next eye surgery. Thankfully it's just a same day procedure and we will be home that night!! He also has tolerated his past eye surgeries so I'm hoping it will handle this one pretty well too!!! Karson is getting big on us! At his two month appointment he weighed 14 pounds 2 oz and is 24 inches long!! He is in the 90th percentile for everything!! Well I hope everyone has a great week!!!
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Our New Journey

Our New Journey
One of our first photos of Keegan

Welcome to Holland


I am often asked to describe the experience of raising a child with a disability-to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this...
When you're going to have a baby it's like planning a fabulous vacation to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum, The Michelangelo David, the Gondolas in Venice, you may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later the plane lands. The stewardess comes in and says Welcome to Holland.Holland?!? you say. What do you mean Holland? I signed up for Italy! I'm supposed to be in Italy. All my life I have dreamed of going to Italy.But there has been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.So you must go out and buy new guide books. And you must learn a new language. And you will meet a whole new group of people you would have never met.It's just a different place. It's slower paced than Italy, less flashy than Italy. But after you have been there for a while and catch your breath, you look around....and you begin to notice that Holland has windmills...and Holland has tulips...Holland even has Rembrandts.
But everyone you know is coming and going from Italy...and they're all bragging about the wonderful time they had there. And for the rest of your life you are going to say Yes, that's where I was supposed to go. That's what I had planned.And the pain of that will never, ever, ever ,ever go away...because the loss of that dream is very, very significant loss.But, if you spend the rest of your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, very lovely things...about Holland.

By Emily Pearl Kingsley 1987