I'm a stay at home mom to two amazing boys. We're not your average family and we have overcome many obstacles with our oldest son Keegan. He was born at 24 weeks 6 days and weighed just 1 pound 12 ounces and was 13 1/2 inches long. He has many different health issues that have kept us on our toes, but he has a smile and laugh that can cheer up even the grouchiest person!!! We also welcomed Karson to our family in the middle of July and Keegan loves being a big brother!! I'm sure these boys will be keeping me busy for awhile!

Wednesday, June 1, 2011

School's Out for Summer!!!!!



Well I have done a horrible job of posting on here, but in all fairness the boys keep my fairly busy!!! Karson, whose asleep at the moment, is at that stage where he is getting into everything, but it's fun to watch him explore new things!! Keegan's last day of Pre-k is today! It's bittersweet. He loves school and had a great year, but next year he will be going to Kindergarten all day!!! Yay, so proud of him. I know it's been 6 months since I have updated, but I don't think anything major has happened! We're still trying to get Keegan to gain some weight but nothing seems to be working. So we may have some extra studies in our future! His hips are also not sitting correctly in his hip sockets so we go back to the Cerebral Palsy Center in a couple weeks to get some more xrays and talk with an orthopedic (bone doctor). They have talked about maybe starting botox injections because that will help relax his muscles that are pulling the hip bones out!! I think that's about it!! We're hoping to be out everyday possible with the boys, just outside playing and letting them enjoy being kids!!! The above picture is Keegan ready for his last day of Pre-K!!!

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Our New Journey

Our New Journey
One of our first photos of Keegan

Welcome to Holland


I am often asked to describe the experience of raising a child with a disability-to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this...
When you're going to have a baby it's like planning a fabulous vacation to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum, The Michelangelo David, the Gondolas in Venice, you may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later the plane lands. The stewardess comes in and says Welcome to Holland.Holland?!? you say. What do you mean Holland? I signed up for Italy! I'm supposed to be in Italy. All my life I have dreamed of going to Italy.But there has been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.So you must go out and buy new guide books. And you must learn a new language. And you will meet a whole new group of people you would have never met.It's just a different place. It's slower paced than Italy, less flashy than Italy. But after you have been there for a while and catch your breath, you look around....and you begin to notice that Holland has windmills...and Holland has tulips...Holland even has Rembrandts.
But everyone you know is coming and going from Italy...and they're all bragging about the wonderful time they had there. And for the rest of your life you are going to say Yes, that's where I was supposed to go. That's what I had planned.And the pain of that will never, ever, ever ,ever go away...because the loss of that dream is very, very significant loss.But, if you spend the rest of your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, very lovely things...about Holland.

By Emily Pearl Kingsley 1987